I did it.
On December 7th, I graduated from law school with a concentration in health law. Last week, I took the Florida Bar Exam. Life has been pretty hectic since I last blogged, but I am excited to get back into it.
In June, I was awarded a scholarship to Seton Hall School of Law’s Healthcare Compliance Certification Program. It was a fantastic week in New Jersey, really fine tuning my knowledge of federal compliance regulations. I was also alarmed at how these laws can negatively impact the rare disease community. Expect more on this topic soon.
In August, I was invited to attend a special meeting with the Venezuelan dissident community in Miami, which was being held by Senator Marco Rubio, Governor Rick Scott, and Vice President Pence.
In September I had a chance to chat with Allen West, a great supporter of the rare disease community.
In October, I was invited to speak at the World Congress Patient Advocacy Summit. My speech was on the 21st Century Cures Act, and the role patient advocacy played in forming the legislation.
Of course, while I was in Washington, DC I made sure to meet up with Congressman Bilirakis to continue working on the OPEN Act.
In December, I met with Corey Lewandowski and David Bossie. We had a chance to chat about the OPEN Act, President Trump’s support of the rare disease community and how we can continue to push for more reforms to benefit the 1 in 10 Americans with a rare disease.
In January, I took a study break to meet former federal judge Ashley Moody, who is running for Attorney General of Florida.
It’s been a busy few months, and now I am back to work, focusing on reforming healthcare regulations and proposing legislation to assist patients and industry meet the end goal of getting treatments to market.