How Washington Can Change Rare Disease: Part Four

PMI Logo

President Obama announced the Precision Medicine Initiative to a room full of doctors and representatives from the healthcare industry. While this is an exciting time for patients dealing with various forms of cancer and other conditions, noticeably absent from the plan was the rare disease community. In fact, I have yet to really encounter anything from the PMI that focusesĀ on researchingĀ rare diseases despite all the rhetoric with understanding genetics and how medicine can taylor treatments to suit an individual.

Continue reading